Imagine a world where disability supports weren’t categorised and under the control of providers.
There are already examples of disabled people managing their own supports, but even in the cases of Enabling Good Lives or Choice in Community Living (both of which use Individualised Funding), there is still a “middle man” of sorts, and still a lot of regulations on how personal budgets can be used.
Imagine getting away from all that. Imagine giving all the funding to the person from the very get go and allowing them to use it in any way they’d like. Or perhaps even, imagine giving them real freedom to use funding equally between necessary supports and option extras that still aid their good life.
For example, someone with a support budget of $60,000 per year would have that entire amount given up front, rather than monthly payments into a nominated bank account. The person could use this money on anything they’d like, including some of the following:
Buying transport to get into the community
Paying for tertiary education fees or existing student loans
Purchasing electronic equipment that can aid the needs of the individual, both personally and professionally (e.g. a film studio or furniture that is accessible)
Paying for experimental drug treatments that aren’t yet funded by the health system
Of course, they could choose to spend their yearly budget strictly on support needs as well. But they’d have the choice, and the subsequent freedom.
What we are talking about here is a shift from formal ways of support, to throwing the rulebook out the window and actually putting the person fully into control of their own budget and how that is used on a yearly basis.
Even with the new initiatives; disabled people actually have no say on what the final figure of their yearly budget is. Supported self-assessments and NASC’s discuss needs, but in the end, the final decision regarding the figure is made by what the system concludes is an appropriate portion relative to the persons’ needs.
System Transformation will do its part in removing the regulation that’s placed on disabled people requiring support, and will in turn provide a greater level of flexibility that ever before. The rest, however, is going to be changes in attitude and releasing the balance of power. That includes budgets and how they are used.