Positive outlook for the MDA heading into 2016

It has been a year of change for the MDA, and as 2016 approaches, positive strives may be on the horizon thanks to a joint effort by National Council and staff.

In the latest In Touch magazine, National Council chairperson Heather Browning revealed that conversations about the aspirations that office staff have for the MDA had been held recently in Auckland.

Browning says that the National Council was left with a greater appreciation of the importance and complexity of working in the disability sector following the conversations.

A strategic plan has been set in motion for the next year.

“I am optimistic that 2016 will be a year of growth”, Browning said.

Former Canterbury chairperson Paul Arthur resigned from his role after a two-year reign, citing that he wanted to focus on his health, but The Real Michael Pulman understands that Arthur was left in a position where the decision was forced due to pressure from fellow branch member Warren Hall.

Acting Chief Executive Ronelle Baker has received positive feedback from Northern Branch chairperson Trevor Jenkin, but Baker herself is taking each day in her stride.

Under Skin Injection Could Lessen MD Weakness

A new drug could lessen the effects of Duchenne Muscular Dystrophy, but some would say that it does little to help those who are already suffering the worst.

The drug, called Drisapersen, is a potential first treatment for Duchenne Muscular Dystrophy that targets an underlying cause of the condition. Pending approval by the U.S. Food and Drug Administration (FDA), the final decision over wether to release the drug onto the market has to be made by the end of December, two days after Christmas to be exact.

An advisory committee will review the drug prior to the FDA making their official decision.

Disapersen, applied via an under skin injection, will not cure Muscular Dystrophy but could potentially lessen the muscle weakness and atrophy caused by the condition.

This does little to help those who are already sick and potentially on their death bed due to the condition, but it is certainly a step in the right direction.